We have been collecting data for Profiles (TiU) since 2011.
Profiles (TiU) is a scientific study on the quality of life of cancer patients and cancer survivors. Researchers from Profiles (TiU) and the Netherlands Comprehensive Cancer Organisation (IKNL) work together with medical specialists from hospitals in the Netherlands.
We survey different groups of patients by means of advanced, custom-made questionnaires. In order to monitor developments over time, we develop follow-up questionnaires at various points in time.
To be able to compare the patient data to a sample representative of the Dutch population, the CentERpanel and the LISS panel complete baseline questionnaires on health topics as well.
Profiles (TiU) manages the contact information of its panel members through a panel management system (PMS) that was developed by CentERdata. Among other things, the system sends out invitations for the questionnaires and monitors the response.